My Cystic Fibrosis  · 21 July 2018
Here are the 3 stages of my life in 5 pictures. Stage 1 : Someone is saying something really stupid or funny or I find it funny enough to let myself laugh loud and feel...I'm starting to laugh and then my lungs .. Stage 2 : My lungs attacks my body and my breathing. They don't want to be happy or they don't want me to laugh because they can't stand it. Cough is controlling my body and I'm fighting this because I really want to enjoy and live this full of laughter moment. Feeling like I'm...
Traveller's LIFE · 20 July 2018
Magical experience, extraordinary place. Nothing else to say. Day 1 – Athens à Istanbul, Turkey à Helsinki, Finland à Tampere, Finland à Youth Center Marttinen, Virrat - 10/06/2018 Waking up early at night felt awful but it was fully worth it because every place I went on 10/06 was amazing. Starting from Athens Airport, taking a flight with connection at Istanbul Airport –wow- landing to Helsinki. From Helsinki airport I took a train and in my way with the train it was when I realized...
My Cystic Fibrosis  · 19 July 2018
Moving back to my home to continue my IVS here. Not everyone can do it and not everyone has the support to do it right. It's not easy to turn your house into a hospital. It's not easy for me, it's not easy for my family members and it's not easy for my health as well. But it's easier than being in the hospital - away from my home and family. It's easier to move my needles, my syringes, mymedication and nebulisers here than comfortable using them in the hospital. It's easier to learn how to...
Traveller's LIFE · 18 July 2018
First time to travel with a friend after a long time! And first time after sometime that I will pay for my expenses. I missed European Union Fundings even before we start this trip. So, it was me and a very unique girl – Evgenia – that we were about to go to a place called MALTA. We went for 8 days – 7 nights – and it was enough, for me : Malta is too small to need more. Before I start, I want to say something. In Greece, they say that lizzards are giving you GOOD LUCK. Believe me, in...
My Cystic Fibrosis  · 17 July 2018
Everyone should think that I'm crazy to laugh till I cry in the hospital. Being admitted to hospital is not easy at all. Everyone is afraid of this, even me. I'm so used to be in the hospital that sometimes I forget the pain in my stomach, the pain I have when something goes wrong in the time I'm admitted here. I'm afraid of the things that can go wrong with my veins-and every time this goes wrong- and I'm afraid of any other complications my admission can have. I'm afraid of the pain that I...
Traveller's LIFE · 16 July 2018
Like really, I don’t know why it took me so much time to put this experience in a paper – to put my thoughts in a row. Maybe it was because I will never forget this experience, maybe it was because of the amazing people I met there-no words to describe them-and maybe it was because I felt like I was still experiencing these days. It’s been 3 months. It feels like yesterday. I will start sharing this from the beginning and I will try to connect every thought and moment I have from this...
About ME  · 16 June 2018
So here I am, writing after a long time. It really takes me time to find myself and put my thoughts in a paper-or a word file. It’s difficult to find time to express yourself sometimes & some other times, it’s even more difficult to stop thinking what you need to do. I have the pleasure meet people everyday and my question is always the same – what are you doing with your life – and then – are you happy? Happiness is not defined the same for all of us. Happiness for someone could...
Traveller's LIFE · 26 April 2018
It's always difficult to start sharing a life changing experience like that, so I will just start telling...! 08/03/18 – Athens → Rome → Madrid Let’s start from the beginning. I was in Athens- at 04:00a.m. running for not losing the airplane , and then wait for 1 hour in Rome for the next flight and after taking an awesome nap during my flight from Rome to Madrid, I ended up at 10:00a.m. in that famous & beautiful place called Madrid. I was staying for the whole day there and i...
Traveller's LIFE · 27 March 2018
How is it to travel with a rare-terminal disease which is killing you? Really normal for me but extraordinary for others. I don’t even remember not having cystic fibrosis and not doing all of this physiotherapy & medicines thing. So for me, travelling with cystic fibrosis is something so normal. Most of the people I met in my last trip were like “how are you able to travel? How can you breathe? When do you make your physiotherapy? And if you get sick here, what are you going to...
My Cystic Fibrosis  · 03 March 2018
Just two weeks ago, I got hospitalized once again for my therapy which is my only routine. I had it all planned and I was just okay about all the procedure. I’m really used to it. For me it’s like doing something so simple like eating or going out for a coffee -I have to do it every once in a while. Having cystic fibrosis can make you see the whole hospitalization thing in a different way. Some people think that it’s difficult and ask me how do I put up with it. Yes, it’s difficult but...

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